Friday, May 12, 2017

one new thing on hold

Well look at that, I haven't written since the end on January. My how things change in a few short months.

We moved at work... that caused a lot of stress in April and now into May. The building is not accessible at all. I am having a very hard time with the stairs (I'll get to that shortly). There's now a law in this province that workplaces must meet certain accessibility standards by, oh, 2016. If I were to make a complaint they'd face almost 100K in fines and I'd likely lose my job (for other reasons of course).

Nonetheless, we've now completed 2 weeks at the new location and I am happy to have my own office again. The constant battle to find/switch offices for sessions was insane. There were times when all of us had sessions at the same time so I had to meet a client in their kitchen. Those days are gone. Ironically though my office still seems to be a gathering place. All I have to do is turn my away from my case-notes and there are two coworkers sitting around. Though I like the company, I have to work. It's called work after all.

So back to the health - the whole reason for the blog: living with CHD and PH. My Pulmonary Hypertension is acting up. A lot. Despite tripping my lasix, I am still experiencing edema. I am out of breath all the time and have a hard time with the stairs. Not 3 months ago was I on a ski hill. You see my theme for 2017 was to try one new physical thing per month.

January started off with the end of my level 1 swimming lessons. I counted it for 2017 even though I started in late 2016 because why not? In February it was Salsa/Batchata. In March it was a ski lesson and in April it was curling. Of the 3 things so far, I much preferred curling. May was supposed to be a 10km and June, the batting cages. I thought, when I felt better of course, that I could maybe join a rec softball team or something.

Also on my list: shooting, paragliding, zip-lining, hiking down Mt Mansfield (Vermont's highest peek). Sadly I'm not sure I'll be able to attempt those things. I'm going to see my specialist is June but I have a feeling that with PH, this is status quo. They are already considering new "designer drugs" (i.e. PH meds that cost thousands a month- no joke).
Boo.
Eighteen months was better than nothing. For a little while I got to experience life as a 'normal' person. No limits, just go.